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The Delphi Survey

Researchers from the University of Oxford and the University of Liverpool are conducting a Delphi consensus survey to understand how we improve data collection and harmonisation for people with mental health needs who are from the LGBTQI+ community.

The Delphi process we will use is one where participants respond to an initial online questionnaire seeking opinions about a topic by indicating their agreement (or disagreement) with a number of statements. Based on this initial round, the content of the questionnaire is refined – for example, if there is overall agreement on some statements, they will not appear in subsequent rounds. Participants are then asked to respond to the new, refined questionnaire. This process usually continues for 3 to 4 rounds. At the end of the online questionnaire rounds, the statements that remain are put to the participants in a single online (virtual) focus group to decide on the final set of statements that can be agreed upon, and to identify those where consensus could not be reached.

This project has been approved by the University of Liverpool Institute of Population Health Research Ethics Committee Reference Number : 12413 on 24th July 2023.

The outputs of this Delphi process will be a toolkit for healthcare, voluntary sector and research and development professionals describing a stakeholder-led consensus on:

  • How to appropriately, sensitively and accurately record data about someone’s Sexual Orientation and Gender Identity (SOGI) for mental healthcare
  • What are the acceptable use cases for using this healthcare SOGI data including stakeholder views on “by who” and “for what purpose” - e.g. can health providers use well-collected SOGI data to identify gaps in their service provision ? is it acceptable to use SOGI data to develop decision support and personalise treatment recommendations using statistical or artificial intelligence techniques with SOGI data

 

We are inviting interested parties to take part in:

  • 3 rounds of an online survey questionnaires (the estimated time to complete the first round is 30 minutes, with subsequent rounds being shorter)
  • Optionally, attending one focus group (estimated time : 1-2 hours) to review the outputs of the 3 questionnaire / survey rounds and agree on a consensus

    

We would like to include volunteers who:

  • Are over 18 years of age
  • Have experience of using (or caring for someone who has used) mental health care services in any setting (e.g. community support groups, public or private healthcare)
  • Would identify as having an LGBTQI+ identity (e.g. either sexual orientation, gender identity or both)

 

In addition, we are seeking volunteers from professional communities who:

  • Are over 18 years of age
  • Are interested in (or have experience of) data for healthcare
  • Work in research, development (universities or industry) or healthcare
  • The NHS, governmental or charity sectors and have direct experience working with LGBTQI+ people

    

If you’d like more information, please see the project website.

A direct link to the participant information sheet.

 

 

We are looking for

Volunteers over 18 years of age, have experience of using (or caring for someone who has used) mental health care services in any setting (e.g. community support groups, public or private healthcare), and would identify as having an LGBTQI+ identity (e.g. either sexual orientation, gender identity or both)

Expenses

N/A