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This paper outlines the development and evaluation of a photobook resource to support parents' decision making regarding potential craniofacial surgery for their child. The photobook was developed at a UK Craniofacial Unit and consisted of preoperative and postoperative photographs of patients with craniosynostosis. It was intended to act as a visual adjunct to detailed verbal discussion of surgical treatment options. No changes in the uptake rate of surgery were detected following the introduction of the photobook. An evaluation of parents' views of the photobook indicates that families generally welcomed the resource and did not report any adverse responses. Ethical considerations of the use of such a resource cannot be discounted, and careful presentation of such a resource in the context of a specialist team is recommended.

Original publication

DOI

10.1097/SCS.0000000000004194

Type

Journal article

Journal

J Craniofac Surg

Publication Date

01/2018

Volume

29

Pages

88 - 91

Keywords

Child, Preschool, Craniosynostoses, Decision Making, Esthetics, Humans, Infant, Parents, Patient Education as Topic, Photography, Postoperative Period, Preoperative Period, Reconstructive Surgical Procedures